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Re: New accomplishments? How is your kid doing?

Posted: Sat Jul 14, 2012 5:28 pm
by jejst
This post make me feel speechless...I am feeling there is "hope" ...Since last year, my son was 3,5 years old and being diagnosed with ASD. My husband and I noticed something on him since he was 13 months old. And right after the diagnosed, he has been doing ABA therapy 2x a week. His therapy also helped us how to talk with him. He is still not interact with his peers easily, I noticed he is more comfortable with his friend after he know them in long periode and seeing them in regular time. He still confuse himself as a third person when he says something but he start playing with his sister, although sometimes he has his moment. He likes coloring and painting. He did also all of allergy testing ex: food allergy and environment allergy test for him, he is not only GFCFSF diet but also diet for the other things on his allergy list. He is not there yet but he is on the way. After all, he is in good hands now.

Re: New accomplishments? How is your kid doing?

Posted: Fri Oct 12, 2012 6:02 pm
by Ian's mom
Hi everybody!! Haven't been on here in a while! Just updating. Still doing mainly homeopathy, have an appointment tomorrow. We love Dr. Ullman but I felt Ian was stagnating, so we started seeing Angelica Lemke this spring. She switched his remedy (from carcinosin to ignatia). I have not noticed the huge wow like we had with the carcinosin, when his horrible eczema disappeared after a week. However, his speech is better. He still sounds immature (just turned 10), still scripts a lot. We still homeschool, and we held him back this year to repeat 3rd grade in his tutorial. He can do the work, but was so immature. And they combined the 4th and 5th grade classes, and I knew he couldn't handle that. He still has some problems with anxiety.

I have an appt with a local highhly-regarded neurologist in january to consider starting him on medication. I hope I have conveyed that I am not against medication, but for myself just wanted to be able to say I had tried pretty much everything. Hoping meds will give him more focus and help with socialization, maybe give him more positive social interactions. We will see!

I know so many kids that have been helped by soooo many things--hbot, diet, meds, homeopathy, biomed, you name it! For Ian, I believe he requires a mix of modalities.

Turns out Ian is very musical! He is taking drums and piano at our church, and actually reading music. I have been working again, and am hoping to attain a full time weekend (yuck) position. My husband works during the week, so we would miss each other.

I just wanted to touch base a little, and hopefully offer new parents on here hope!

Re: New accomplishments? How is your kid doing?

Posted: Thu Dec 20, 2012 9:38 pm
by helpforkids
I have a question about the fascination with single topics.

If your child is only interested in one thing - say super heroes - how difficult is it to get him or her to engage with something this does not feature that interest?

Thanks B

PS My friend is a speech pathologist who is doing a survey here if you have a couple of minutes to spare : http://www.surveymonkey.com/s/87G7GCS Thanks!

Re: New accomplishments? How is your kid doing?

Posted: Sun Dec 23, 2012 12:36 pm
by respect
Hello Everyone - I haven't been here in such a long while but I wanted to update again on my son who is now 9 years old. If you were to go back to my posts full of anguish stemming from 2005 onwards you would have seen I was a parent in pain, vulnerable, desperate, afraid, uninformed and just plain crazy worrying about autism.

My little boy seemed to be disappearing in a maze of medical jargon, labels and pathologising epithets, emanating from know it all doctors, clinicians etc.

Well, fast forward 6 years or so and we have a completely different little guy, a different life. It would be silly of me to try and say to parents new to the diagnosis of autism, 'don't worry' - of COURSE you are going to worry - in fact one of the things i will always remember is a parent saying to me in the 'bad' times went something like this, " so your kid has autism, what is your problem?"

In retrospect, I can see now where that parent was coming from (her child at the time was 15 - mine was only 3 at the time).

Briefly, at age 2/3 my son had no words, did not know who I was - did not develop words till about age 5.5 - 6 and only at around age 8 was able to speak in a sentence. We home educated till age 7.5 - school (and nursery) was a nightmare - I could not see the future.

But I can now.

This may tick some parents off, but what I learned is that there is no magic ABA program or Sonrise program or RDI program - the 'program' is YOU - you are the expert by experience, and you are the teacher. What your child wants and needs is YOU.

I am writing here in this thread to say that what you see now, before you, as a child, whether 3 or 16 is not what is going to 'be' tomorrow. Self fulfilling prophesies don't wash (especially others') when it comes to autism.

No one can say to me, that 'you were lucky, your little boy talked, etc etc - my son did not know me, his surroundings, he was a force unto himself.

He changed - oh did he change - I always taught him at least 2 or 3 steps ahead of where he was at and never succumbed to the negativity of others.

Forces of nature our kids are - forces of nature. Never lose hope.

Re: New accomplishments? How is your kid doing?

Posted: Sun Dec 23, 2012 1:02 pm
by Jupiter
Wonderful post, respect!

So glad to hear how well your son is doing and I could not agree more that the magic bullet is YOU!

A very Happy Christmas to you and yours across the pond.
:)

Re: New accomplishments? How is your kid doing?

Posted: Sun Dec 23, 2012 1:31 pm
by respect
Do I know you Jupiter? Been a long time since I was here.

Re: New accomplishments? How is your kid doing?

Posted: Sun Dec 23, 2012 2:10 pm
by meg2010
This summer we discovered my daughter had vision problems... -2.0 on both eyes. In her appointment we also discovered that her eyes had trouble with convergence... Convergence insufficiency occurs when your eyes don't turn inward properly while you're focusing on a nearby object. When you read or look at a close object, your eyes should converge — turn inward together to focus — so that they provide binocular vision and you see a single image. Her eyes could not do so for more than one second (should be able to hold for minimum 10 seconds). Well it happens than this test was done before we started biomeds. We just went for a follow up this month (4 months on biomeds) and the eye dr. was shocked. She tested well within normal means this time. She is still near sighted but has no problem with convergence, and her reading and comprehension also improved dramatically. I attribute this to biomeds... we were to do home exercises with her after the first appt to strengthen those muscles and help with the convergence but starting biomeds was a little ovewhelming and we totlally slacked on the eye exercises. This was a big WOW for us this week. :)

Re: New accomplishments? How is your kid doing?

Posted: Tue Jan 22, 2013 4:17 pm
by Jupiter
respect wrote:Do I know you Jupiter? Been a long time since I was here.


nope!
I don't actually know anyone on the forum but I have lots of people in real life that I know.
I just thought your post was delightful and optimistic.
:D

Re: New accomplishments? How is your kid doing?

Posted: Wed Jan 23, 2013 2:22 am
by lwacaster
This may tick some parents off, but what I learned is that there is no magic ABA program or Sonrise program or RDI program - the 'program' is YOU - you are the expert by experience, and you are the teacher. What your child wants and needs is YOU.



Ain't that the truth.

Re: New accomplishments? How is your kid doing?

Posted: Wed Mar 06, 2013 8:46 pm
by specialme
:D I love the responses to this post, of children accomplishing things others said they would never do. Oh! how children with autism and other sensory processing conditions are proving them all wrong. Keep posting your child's accomplishments. It is a great feeling to know that all is not lost. That there is hope for parents whose children are still struggling to get to the place where they can develop language, socialization, cognition,motor and perceptual skills. :D

Posted: Thu Mar 14, 2013 5:18 pm
by jejst
deleted

Re: New accomplishments? How is your kid doing?

Posted: Thu Mar 14, 2013 10:11 pm
by kaleighs_journey06
CONNOR wrote:We've been toilet training my 4 1/2 year old boy for 4 months now, after a lot of accidents
and constant bringing him to the toilet,he just got up one day after his nap and went
to the bathroom on his own. This is a huge accomplishment, I thought it was never
going to happen, but it did. I am just hoping the same happens with his speech, because
I am slowly dying inside, I need my son to talk to me. Please pray that my son talks to me.

angel


That's a wonderful accomplishment! We're still working on toilet training with our 6yr old daughter. She's stubborn though lol. We're getting close. If your son can all of a sudden go to the bathroom on his own, I'm sure one day he's going to blurt out a full sentence when you least expect it. I used to work with a lady who has a son on the spectrum. He was also non-verbal until he was 9 yrs old. She said one day while she was driving her son blurted out from the backseat "I want Whitecastle!" She was so shocked she almost stopped the car in the middle of the road! He was completely non-verbal before then. So, you never know. Our daughter is almost 7 and is non-verbal but she's very vocal. I'm sure your son will talk soon:-)

Re: New accomplishments? How is your kid doing?

Posted: Tue Aug 13, 2013 10:17 pm
by condorguy
Hello everyone,

I am one of the ones that used to visit these boards multiple times per day and read every post a few years ago and now have not been here for a while.....for all of the parents out there that are searching for answers and hope, let me tell you that there is hope at the end of the tunnel.

My son was 2 when we first figured there was an issue - he had the typical signs - not responsive to name, did not understand yes or no. no language, spinning, etc. As soon as we figured we had an issue we jumped headstrong into ABA and the biomedical stuff....

Fast forward to today - my son is 6 and will be starting Grade 1 in a private school that is for kids with learning challenges such as ADD, ADHD, etc. We never thought he would graduate from ABA school but he did. He aced the entrance assessment at the school and we are excited to have him start what is the next step in him graduating to a NT school.

He is a loving boy, talks, can express himself, is learning new things and a joy to be with. He still has some behavior issues and issues with aggression and meltdowns but we are still working through those.

I never thought I would see the day when he we could have a conversation but we are almost there. Keep up the hope!

Re: New accomplishments? How is your kid doing?

Posted: Wed May 28, 2014 7:47 pm
by zeldapinwheel
I am sorry I just joined. It has been so wonderful reading everyone's posts. I have a 41/2 year old and he is doing really well in his specialized pre k school. He is talking so much more. I joined because with all my happiness at all his accomplishments of course today I had a totally Bad experience at our new school mandatory "welcome next year's kindergarteners" total meltdown and we left. He loves his school now and I wish he could stay there forever but he is aging out. All my good feelings about my his IEP meeting and services gone down the tube and I know I shouldn't feel this way. He is going into an integrated class and seeing all the typical developing kids next to him was just heartbreaking and I know I shouldn't feel that way either. In the last year he has started talking to me in 3 to 4 word sentences as opposed to grunts. He is potty trained. A lot more successes and I am so grateful, it's just sometimes the behaviors make me so sad and I am terrified about leaving this school. Thanks for listening.

Re: New accomplishments? How is your kid doing?

Posted: Thu May 29, 2014 7:40 am
by zeldapinwheel
In responseto the obsessing on one topic. My son really loves umizoomi and trains. What I did was find things that were interactive with these things. Umizoomi is by itself but when it gets too much I make him focus on my face and I repeat " no more umizoomi let's put it away" over and over with a cuddle until he stops quoting and wanting. You know old episodes of Electric Company have Spiderman helping with words. I also introduce something else as a replacement. Usually a colorful game or toy or book. I have learned if I can take something he likes and make it educational it's helpful. Talk with your child through superheroes. Like puppets. I don't know if this is helpful. I just always try to find a way to communicate through what my son likes rather than take it away completely.

Re: New accomplishments? How is your kid doing?

Posted: Wed Jul 02, 2014 2:39 pm
by teabeats
My son Deandre was born dying and we found out about autism at age 3. He lapsed when he was about 5 and we have struggled to regain him every sense. 17 now Deandre is functioning and has made it back to public school. He now co-founds a non for profit that helps other special needs children(special needs special children).

Re: New accomplishments? How is your kid doing?

Posted: Tue Apr 14, 2015 2:18 am
by rebeccaschool
Sometimes kids exhibit behavioral problems but positive and tactful parenting can prevent behavioral issues from becoming persistent and repetitive.

Re: New accomplishments? How is your kid doing?

Posted: Thu Apr 30, 2015 5:29 pm
by RuffBMX
My son's name is JJ. He is 11 years old and non verbal. We were told by the Autism specialist after 2 years of training on his bike to give up, he will never pedal. JJ and I never gave up and he has been riding now for 5 years.He just started jumping his bike. Check out his latest video https://www.youtube.com/watch?v=zeithVrCRnY
JJ loves to ride.

Re: New accomplishments? How is your kid doing?

Posted: Tue Aug 18, 2015 11:09 am
by jejst
Hello everyone,

It's been a while I've never post anything here. He is about 8 years old now, I've joined this site when he was 5 years old. Time flies :) .
My son has been doing better but sometimes he has his moment. One thing about your child with Autism is a blessing. I believe every child is smart. Since he was 6 years old, he had never been on his diet anymore. But I still cook homemade food at least once every 3 days. He is not cure, he still has Autism. It has been a roller coaster emotional but deep in my heart I know he will be alright.

What he does everyday:
1. He plays with his sister in our backyard at beautiful weather.
2. TV, I-pad, computer only for weekend and holiday.
( I don't know why but it could be from loud TV commercial breaks distracted my son to listen us)
3. He likes drawing in his free time.
4. His school wants him read one book everyday. He still struggle with reading comprehension, but we try worked on it.
5. We put him in special school for learning disability with 10 student in one class. Some kids with dyslexia, some kids with Autism.
(I know we have to pay from out of our pocket :| )
6. He talks so much with his sister, his family, but he's not with new friends.
7. He used to be in gymnastic and he said he didn't like it.
So he stopped, maybe we will find another sport that he likes.
8. No specific medicine for him, just over the counter medicine for his seasonal allergy.
9. Fish oil.
10. No more ABA therapy, he has been on this therapy for 3 years. We try the best we can to involved with him what he's doing,
for ex. painting together.

As his mother I did went to school for learning special education. I am not become a teacher yet, but what I've learned and got to know my son better. Although maybe I will understand him one day or maybe I will not understand him the other day.
I am in the stage of accepting right now. I don't want to expect so much higher for him, but we just try to enjoy life what we have right now. :) We try to be positive everyday, it's not easy but I know he will be alright.

Sending hugs for all of the parents who has child with disability especially Autism.
And also do give pat on your own back said "Great Job". :)

Re: New accomplishments? How is your kid doing?

Posted: Sat Sep 26, 2015 1:14 am
by HeyJefferson
Reading through the posts in this thread makes me realize there is hope and I'm not alone in the world