What Are Your Top Six Interventions - Biomed or Otherwise

Discuss autism diets and biomedical treatments of autism.

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Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

What Are Your Top Six Interventions - Biomed or Otherwise

Postby Dani » Thu Apr 02, 2009 7:12 pm

I'm curious about what has worked for others. It doesn't have to be something that brought a dramatic wow. Something that brought a noticeable improvement would count.

Can you list the top six things, in no particular order, of things that worked well for your child on the spectrum? :wink:
I didn't know how strong I could be until I had to be.

RecoveringNicholas
Posts: 473
Joined: Mon Jun 02, 2008 2:05 pm

Postby RecoveringNicholas » Thu Apr 02, 2009 7:17 pm

In order from best on down... they were all good:

1. AC chelation
2. HBOT
3. MB-12
4. Enhansa/Antifungals/Biotin
5. High Dose Vitamin A Protocol
6. Omega Fish Oil

FuzzyOne
Posts: 778
Joined: Sat Jan 03, 2009 1:00 pm

Postby FuzzyOne » Thu Apr 02, 2009 7:32 pm

UPDATED LIST as of 01/26/10

1) GI Treatment - prednisolone, entocort, pentasa, elemental diet (no longer on prednisolone or entocort, but remains on latter two) - brought language, seizure reduction, cognitive gains, no longer FTT
2) ABA Therapy - continued improvements across the board
3) IVIG therapy - continued seizure reduction, no longer on continuous antibiotics for infection
4) Bactrim - sounds contradictory, but he takes it the first ten days of the month and it helps address the autoimmune issue in his small bowel
5) removal of casein
6) a really good compounded multi vitamin/mineral/added supplements mix in liquid form

**********************************************************************

i'm interested to see everyone's answers. we've had some good results, but they often fade. i guess i'll post them anyway:

1) removal of casein
2) TMG
3) enhansa
4) valtrex
5) prednisone (currently using, so can't say it's faded)
6) SCD

and one more:
7) zinc (stopped teeth grinding)
Last edited by FuzzyOne on Tue Jan 26, 2010 5:24 pm, edited 1 time in total.

Grace
Posts: 3915
Joined: Wed Nov 23, 2005 8:54 am

Postby Grace » Thu Apr 02, 2009 7:40 pm

not in order:
MB12
antibiotics and antifungals
TD-DMSA chelation
LOD
Valtrex
Liverlife showed amazing things when first started
~Blessed to be called Mama by many~

tmargetis
Posts: 805
Joined: Wed Feb 28, 2007 11:50 am

Postby tmargetis » Thu Apr 02, 2009 8:26 pm

For us, this is our top 6.

1. B12 nasal spray
2. Oxytocin nasal spray
3. Gastrochrom
4. DIET. Rotation of SCD, Body Ecology, GF/CF. No dyes, food colorings
5. Artemesin for the gut
6. Anti fungals, especially Vancomycin

I have realized that my son is one of those 100% gut kids.

Tanya

Janie
Posts: 750
Joined: Sun Aug 10, 2008 9:18 pm

Postby Janie » Thu Apr 02, 2009 8:43 pm

1. Diet - GFCFSFYF
2. Omega 3
3. antifungals
4. theraputic listening
5. liver life
6. speech and sensory integration therapy
Mom to one 6 yr old - HFA

williams_dad
Posts: 2953
Joined: Sun Feb 12, 2006 6:47 am

Postby williams_dad » Thu Apr 02, 2009 8:51 pm

Our most important would be
#1 Undenatured protein

followed by ( in no particular order )
#2 Major Minerals - Selenium, Zinc, Magnesium, Calcium
#3 Lactoferrin
#4 B-group vitamins particularly B-12
#5 Omega 3 & 6 oils
#6 Trace minerals - Chromium, Molybdenum, Vanadium, Boron etc


WD
http://spectrumsleuth.fr.yuku.com/forums/11/General/General

Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

Postby Dani » Thu Apr 02, 2009 8:56 pm

I should answer my own question. :lol:

Updated as of November 2012

Our top interventions so far in no particular order...

Therapies: Verbal Behavior ABA therapy (huge improvements in functional speech, asking questions, responding to questions, etc.) plus inclusion classroom at school with supports in place and special ed pullout time; Floortime therapy; sensory activities for sensory regulation (daily)

Biomed:
--Dr. Amy Yasko genetic test of mutations in the detoxification pathway and supplementation according to genetic issues
-Digestive Enzymes with meals (this was a HUGE intervention for us)
-Antifungal/yeast treatments like Flucanazole, Ketocanozole, Uva Ursi, Nystatin to manage yeast overgrowth. Not all given at the same time!
-natural and prescription antibacterials for pathogenic bacteria
-BH4 (tetrahydrobiopterin)..this was a huge for her.
-DHA/EPA, essential fatty acids/Omega-3s from Nordic Naturals
-Methyl B12 shots (big help for speech and later fine motor skills)
-Vitamin D3 drops (reduced the number of colds in a year by nearly half)
-Leucovorin, Celebrex and Namenda
Last edited by Dani on Tue Nov 27, 2012 9:17 pm, edited 25 times in total.
I didn't know how strong I could be until I had to be.

Perfect7
Posts: 172
Joined: Wed Feb 04, 2009 8:23 pm

Postby Perfect7 » Fri Apr 03, 2009 10:25 am

We haven't done that many, but here goes:

1) Cod liver oil high in A&D
2) Remove casein briefly, then Petizyde and multi enzyme
3) Culturelle
4) Speech therapy
5) Enhansed Absorption Curcumin
6) Nasal MB12

Good post for info. Thanks!

Dana
Posts: 2781
Joined: Tue Mar 01, 2005 4:22 pm

Postby Dana » Fri Apr 03, 2009 10:29 am

For my son...

GFCF
Valtrex
NDFPlus, LiverLife
Evening Primrose Oil
Vitamin D3
Dana

dgdavis64
Posts: 5241
Joined: Sun Mar 20, 2005 11:51 pm

Postby dgdavis64 » Fri Apr 03, 2009 10:58 am

Sorry if I exceed 6....

GC/F diet (we have been able to add back in a small amount of wheat, but dairy is still a no no. I also sometimes give Houstons enzymes for too much wheat.)

chelation- (off and on since '05)NDFs, PCA-Rx, NCD, selenium, TD DMPS, TD DMSA, DMSA suppositories ALA (AC protocol) OSR.

Sign language - SigningTime.com

galantamine

Liver Life

Folapro

Heathers Tummy Fiber

CLO/Flaxseed meal/oil

ST has helped with tracking real gains....

Beware of the pharma trollbot shills posting from anonymous proxy servers

Dana
Posts: 2781
Joined: Tue Mar 01, 2005 4:22 pm

Postby Dana » Fri Apr 03, 2009 11:03 am

Hey how did I only list 5???? Hehehe! 6th would have to be all the ABA, not neccessarily coming in 6th place :wink:
Dana

csm8888
Posts: 149
Joined: Tue Feb 05, 2008 1:12 pm

Postby csm8888 » Fri Apr 03, 2009 11:51 am

Removal of casein
Spectrum Awakening Vitamins
Baby Bumblebee Videos
Diflucan
SCD
DMPS w/ALA

Omamma
Posts: 428
Joined: Tue Mar 21, 2006 11:56 am

Postby Omamma » Fri Apr 03, 2009 12:02 pm

For us:

1. Video modeling DVD's
2. DMSA
3. MB12 injections
4. Curamin (enhansed cucurmin)
5. Transfer factor
6. GF/CF low carb diet



(It was a toss up between # 2 and #3, both were big wow's. We just started # 4, but I'm beginning to think that may be bumped up to # 2 as well.)

sammick
Posts: 326
Joined: Tue Jul 03, 2007 8:50 am

Postby sammick » Fri Apr 03, 2009 12:28 pm

Not in any order:

1. MB12 injections
2. Chelation
3. HBOT
4. Pro EFAs and Pro EPAs
5. Ketoconazole
6. Enhansa (before this we did Valtrex for over a year with nice gains)
7. ABA & Theratogs
8. Metadate CD
Kristen & Matt

Samantha 7
McKinley 6 Dyspraxia, ADD/ADHD, recovered ASD
Riley 2
Cadighan 1

tmarthaler
Posts: 1174
Joined: Mon Mar 27, 2006 5:46 pm

Postby tmarthaler » Fri Apr 03, 2009 1:30 pm

b12 shots
glutathione
hbot
naet
OSR
cod liver oil
Hope
Mom of Three - TG - 13, ER - 10 and Sam - 8.

Liz77
Posts: 832
Joined: Sat Jun 09, 2007 10:49 am

Postby Liz77 » Fri Apr 03, 2009 3:30 pm

The six things that are most helpful now

1. Removal of Casien and Gluten
2. Floor time
3. Inclusion and NT peers
4. Medadate CD 10mg and behavior chart
5. Our dogs
6. Ear tubes (no more ear infections)

Things that helped along the way
1. GFCF diet
2. Fish oil
3. Floortime
4. Inclusion
5. Tae kwon Do
6. Speech/OT

Nikosmom
Posts: 556
Joined: Mon Nov 26, 2007 7:11 pm

Postby Nikosmom » Fri Apr 03, 2009 6:04 pm

In Order of what had the most effect overall on our kids:
1. Classical Homeopathy
2. Specific Carbohydrate Diet
3. Antiviral protocol (using both Naturals and RX with an enzyme like Virastop)

Everything else was helpful but what actually recovered our kids was the 3 I listed.
Niko- Age 4.3 Recovered from ASD
Ilianna- Age 2.10 Recovered from PDD-NOS and Severe Gut problems

aisha
Posts: 1345
Joined: Wed Nov 16, 2005 3:45 pm

Postby aisha » Fri Apr 03, 2009 6:16 pm

i am sorry i am not answering what the post had asked but, hope its ok to ask questions about it. i wish soon i ll be able to answer this question as of right now we are not there yet.
fuzzy one how is prednisone working out for you guys.
janie , i want to know more about therapuetic listening, how it helped, what was the protocol. thanks so much

jennifha
Posts: 650
Joined: Sat Nov 03, 2007 2:08 pm

Postby jennifha » Fri Apr 03, 2009 7:36 pm

So far...

1. GFCF (and corn free, peanut free) diet
2. B12 shots
3. RDI
4. A good combination special ed and inclusion preschool program
5. Managing yeast (diflucan/ketakonazole/probiotics)
6. Tie - Melatonin/treating reflux

Lots of treatments that I still want to try though!!


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