GcMAF

Discuss autism diets and biomedical treatments of autism.

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FatherOf2
Posts: 1494
Joined: Mon Mar 11, 2013 1:37 am

Re: GcMAF

Postby FatherOf2 » Tue Jul 08, 2014 2:02 pm

I also would like to hear the experiences from those who took Bravo probiotic for more than a couple of weeks. There was one user here (autismprovider) who reported to pay $1000 for a 3mo supply but no changes after a couple of months (http://www.autismweb.com/forum/viewtopic.php?f=4&t=31130). It looks interesting on the surface, but after trying a dozen different probiotics and seeing nothing, I am pessimistic about Bravo - probably just another probiotic, expensive and time-consuming to prepare.

kulkulkan
Posts: 2075
Joined: Tue Mar 13, 2012 1:37 pm

Re: GcMAF

Postby kulkulkan » Wed Jul 09, 2014 1:57 pm

FatherOf2 wrote:I also would like to hear the experiences from those who took Bravo probiotic for more than a couple of weeks. There was one user here (autismprovider) who reported to pay $1000 for a 3mo supply but no changes after a couple of months (http://www.autismweb.com/forum/viewtopic.php?f=4&t=31130). It looks interesting on the surface, but after trying a dozen different probiotics and seeing nothing, I am pessimistic about Bravo - probably just another probiotic, expensive and time-consuming to prepare.


Same here. Probiotics have done nothing for us either, so not really optimistic from that perspective. Tried half a dozen, but this one claims to have MAF314, so it is positioned as an alternative to trying GcMAF shots. No studies of course, and not much anecdotal reports either. Aside from waste of $$$, I think downside / side effect risk is minimal unlike the shots, so considering it.

andyseattle
Posts: 148
Joined: Wed Jan 29, 2014 4:20 am

Re: GcMAF

Postby andyseattle » Thu Jul 10, 2014 9:10 pm

Thank you Fatherof2, you make a good point.

ninibaba
Posts: 46
Joined: Wed Apr 24, 2013 10:49 pm

Re: GcMAF

Postby ninibaba » Thu Jul 24, 2014 10:21 pm

what is BH4?

andyseattle
Posts: 148
Joined: Wed Jan 29, 2014 4:20 am

Re: GcMAF

Postby andyseattle » Fri Jul 25, 2014 12:40 am

BH4 is a cofactor that carries electrons for redox reactions. The pterins, neopterin and biopterin, are
by-products of these reactions. BH4 functions as a cofactor for the enzymes responsible for the production of monoamine neurotransmitters (epinephrine, norepinephrine, DOPA, serotonin), and as a cofactor in nitric oxide production.

For more information,
https://www.metametrix.com/files/learni ... pterin.pdf

luis
Posts: 246
Joined: Thu Sep 25, 2008 8:42 pm

Re: GcMAF

Postby luis » Sat Jul 26, 2014 2:41 pm

TamiW wrote:Anyone try the oral GcMAF?


I would be interested on that, too.
The name is GOleic drops, I believe.

ilam786
Posts: 1
Joined: Sun Feb 01, 2015 7:54 pm

Re: GcMAF

Postby ilam786 » Sun Feb 01, 2015 8:30 pm

Illyboy,

I am from south africa and looking at speaking to someone who has been down the biomed path in particular gcmaf. Is there any way i can contact yoy.

AIM
Posts: 33
Joined: Wed May 14, 2014 4:35 pm

Re: GcMAF

Postby AIM » Wed Feb 04, 2015 12:44 pm


Mike WP
Posts: 1
Joined: Mon Jul 13, 2015 12:41 am

Reporter seeking stories from GcMAF patients

Postby Mike WP » Mon Jul 13, 2015 1:19 am

Hello. I am a reporter for The Washington Post. I am looking into GcMAF treatments by the late Dr. Jeff Bradstreet. I'm posting here in the hope of hearing from Dr. Bradstreet's patients. If you or your child has been a patient of Bradstreet's, please contact me. I would like to hear about your experience, whether it was positive, negative or neutral.

GcMAF injections have recently been blamed for a handful of deaths in Europe. Several GcMAF labs -- including the one connected to Dr. Bradstreet -- have recently been raided. It also appears as if Dr. Bradstreet's Buford, Georgia clinic was raided shortly before his death due to his GcMAF treatments.

This is an important public health issue. If you would like to speak to me, please email me: michael.miller@washpost.com

You can remain anonymous.
Thank you.

Michael E. Miller
Washington Post

Mouse
Posts: 63
Joined: Mon Jun 08, 2015 10:46 pm

Re: GcMAF

Postby Mouse » Mon Jul 13, 2015 10:05 pm

I doubt you'll get a lot of cooperation. A lot of alternative medicine is shunned by mainstream media, despite a lot of it actually helping. I'm not a patient of Dr Bradstreet, but if I were I wouldn't share it with the media until the media confesses to many things first.

#1 Vaccines can cause autism. It may or may not be behind the drastic rise, but 2 people from the CDC has come forward and admitted to it but the media won't cover it.
#2 We are over a decade behind on research because the CDC has covered up the link between autism and vaccines for so long. William Thompson is a CDC whistleblower but no mainstream media has picked up the story. Instead of coming clean and demand safer vaccines for Americans we are labeled as ANTI Vaccine or ANTI Science. The mainstream media is so strong at pushing the government's socialist agenda that my own mother insists I vaccinate my child despite horrible vaccine reactions.
#3 Pharmaceutical bribes our dirty politicians like Senator Pan to pass laws removing vaccine exemptions and George W Bush giving pharma, mercury manufacturer, and doctors liability free vaccines. (actually Sacremento Bee ran an article about how much money is behind our vaccine push)
#4 DNA isn't the cause or autism. Genetics alone can not be the cause of autism. Too many identical twins exist where one is affected and the other is not, or affected differently.
#5 I'm tired of hearing autism is not curable and that my son's brain is different and I should accept him for who he is. I love my son more than anything. His reactions to chemicals in America's low quality foods containing artificial colors, flavors like vanillin and preservatives/stabilizers like polysorbate are tough to accomadate. We do the best we can but some of these things turn my son from mildly autistic to more moderate/severe. If autism isn't curable then why is it so closely tied to the gut?
#6 Every kid with Autism is different. I know my son does better with probiotics, roughly 50% who tried chelation report it helps their kid. It's not dangerous, perhaps it's potentially hazardous and should be done under doctor supervision but dangerous is the wrong word.
#7 Better identification is not behind the rise in autism. 20 years ago there were no autistic children in my school, now they can fill a class and even have special schools dedicated to autism. I had some kids with downs in our school, I've even seen a kid required to wear a helmet, but I've never seen autism then. Sure there were plenty of shy kids, but they weren't autistic. Today's autistic kids can't be integrated whereas shy kids just didn't talk much.

Pirsig
Posts: 83
Joined: Tue Mar 31, 2015 10:47 pm

Re: GcMAF

Postby Pirsig » Tue Jul 14, 2015 9:56 am

Mouse wrote:
#1 Vaccines can cause autism. It may or may not be behind the drastic rise, but 2 people from the CDC has come forward and admitted to it but the media won't cover it......


Great post. I am guessing most parents here feel the same way about the governmental organizations, mainstream media and pharmaceutical companies.

Winnie
Posts: 4226
Joined: Sat Mar 18, 2006 2:48 pm

Re: Reporter seeking stories from GcMAF patients

Postby Winnie » Tue Jul 14, 2015 6:21 pm

Hi Mike,

One of the few accurate statements of fact in ^those responses is that you are not likely to receive a lot of cooperation. Even parents who were unhappy with Bradstreet will likely not respond -- some parents will even continue to defend a practitioner or salesperson after the person is proven to be peddling a fraudulent cure. This seems especially true when they are invested in a treatment belief system (often coincides with the info/beliefs promoted by kooky conspiracy sites).

Since autism -- like a lot of other conditions -- does not have a known cure, desperate patients and parents are easy targets. Parents, especially those relatively new to autism or those feeling not helped by their health care practitioner, are desperate for a message that leads them to a cure. These cure and recovery claims are very attractive to parents. And the unsupported causation claims made by practitioners (including Bradstreet) are attractive as well, since parents are led to believe that the "known" cause can be undone.

So we end up with parents following and believing the unsubstantiated recovery claims of a dude on the internet (Andrew Cutler) who claims six years or so of chelation will cure a child (mercury causation), and of Kerri Rivera, who claims bleach ingestion and enemas cure autism (parasite causation), and of practitioners like Bradstreet who claim (among other claims over the years) that homeschooled unvaccinated kids with autism are non-existent (vaccine causation).

None of which are true, but all dangle "recovery" under the noses of parents to peddle their wares, tell the parent what they want to hear, and take credit for any progress a child/patient makes while using the treatment.

The Remembering Dr. Bradstreet Facebook page has repeatedly asked followers to post testimonials (positive, of course) but to not post any information regarding treatment modalities. Bradstreet's posts on his own blog pertaining to GcMAF have been removed. It seems they (?) are actively attempting to close ranks and cover his involvement/experimentation with this substance, so I'm not optimistic that a reporter will have much info (positive or negative) volunteered by parents or patients.

Good luck though -- I hope you do and I look forward to the article.
Winnie
"Make it a powerful memory, the happiest you can remember."

LesleyHutchings
Posts: 1
Joined: Wed Jul 15, 2015 4:53 am

Re: GcMAF

Postby LesleyHutchings » Wed Jul 15, 2015 5:21 am

Mike

GcMAF injections have NOT been blamed for a handful of deaths in Europe. A clinic run by First Immune, which used the Goleic as the form of GcMAF, was closed by the Swiss authorities following the deaths of five people. All these patients went to the clinic with terminal cancer, having been told nothing further could be done by mainstream medicine. The clinic was closed because it was making claims for cures that were, in the view of the authorities, unsubstantiated, and was using an unlicensed medication (although doctors are allowed to prescribe off-label if there is nothing in the pharma repertoire that is suitable for their patients needs). Mentioning the deaths of terminally ill patients that could not be saved does not make for headline grabbing, newspaper selling headlines. I wish reporters were more investigative, rather than sensationalist, but truth doesnt sell papers does it?

This sort of reporting creates fear and apprehension amongst those who have used this protein to help their child, who are probably scared that they have caused some harm.

Let's now address the misinformation put out about it being 'contaminated' and 'unfit for human use'. I worked for first immune and know when their ingredients come from. I left them two years ago, but from the reporting I would guess that they still use the same suppliers. They purchased from a laboratory reagents supplier. This supplier makes and sells hundreds of products. The base product for gcmaf does come from human blood. This comes from the American red cross donation who screen all donors. All blood is tested on receipt and found to be non reactive for infectious diseases hbv, hiv, hepatitis etc using fda approved tests. However EVERY product for sale from this company has the clause 'not to be used in drug treatments or administered to humans' This sounds sensible enough for the company to have this disclaimer on their products as they do not want any come-back for being the supplier of reagents. But when you realise that this disclaimer covers everything, including products from breast milk and bovine liver, or becomes clear that this is not a health and safety issue, more a disclaimer to protect the supplier from potential lawsuits. The supplier does state that the product may be used for further manufacture. So the use of it is not banned, nor is it unsuitable for human use

After receiving the screened donor blood, the extraction process for the protein is complicated. It is a rare component in blood and can be likened to picking a cherry from a tree. The garden is the blood in all is complexities, including spiders, ants, weeds, flowers, vegetables, soil, water etc. To pick and use the cherries does not involve any of the other stuff. It's the same with gcmaf. It is just the protein with nothing else in it. Tests of the end component showed the protein to be pure.

Being a protein, made up of amino acids, if the body does not need it, it will be broken down into its constituent amino acids and these are reused (they are the building blocks) elsewhere.

Things that the police need to take into account in their investigation into the death are - who stands to gain from the loss of Dr Bradstreet. At the time of his death, the vote for mandatory vaccinations was going through congress in california. At least two major pharmaceuticals are developing immunotherapy drugs that stimulate the immune system to deal with a wide range of ailments, using the same action as gcmaf. That is, allowing the immune system to deal with any and all ailments that it can. This will not be the naturally occurring and non-harmful gcmaf (of which no one has reported side effects over and above those seen from an awakening immune system). Gcmaf cannot be patented and so it has to be stopped. The investment by pharmaceuticals into a new drug is colossal. Research grants, sponsorships, clinical trials, speakers, conferences, marketing, PR, etc etc. They cannot afford to compete against a naturally occurring protein. Gcmaf has to disappear and all research that shows its effectiveness has to be discredited.

The discrediting started last year when a cancer charity forced the retraction of early papers, after being approached by many people asking about the validity of the claims. Rather than realising that this has extremely valuable potential and sponsoring a large scale clinical trial (after all, if a cancer charity does not have the funds to investigate natural treatments, no one does!), they try to remove all evidence and close all supply lines. One can only wonder why a charity would take these steps

Mouse
Posts: 63
Joined: Mon Jun 08, 2015 10:46 pm

Re: Reporter seeking stories from GcMAF patients

Postby Mouse » Wed Jul 15, 2015 9:09 am

Winnie wrote:Hi Mike,

One of the few accurate statements of fact in ^those responses is that you are not likely to receive a lot of cooperation. Even parents who were unhappy with Bradstreet will likely not respond -- some parents will even continue to defend a practitioner or salesperson after the person is proven to be peddling a fraudulent cure. This seems especially true when they are invested in a treatment belief system (often coincides with the info/beliefs promoted by kooky conspiracy sites).

Since autism -- like a lot of other conditions -- does not have a known cure, desperate patients and parents are easy targets. Parents, especially those relatively new to autism or those feeling not helped by their health care practitioner, are desperate for a message that leads them to a cure. These cure and recovery claims are very attractive to parents. And the unsupported causation claims made by practitioners (including Bradstreet) are attractive as well, since parents are led to believe that the "known" cause can be undone.

So we end up with parents following and believing the unsubstantiated recovery claims of a dude on the internet (Andrew Cutler) who claims six years or so of chelation will cure a child (mercury causation), and of Kerri Rivera, who claims bleach ingestion and enemas cure autism (parasite causation), and of practitioners like Bradstreet who claim (among other claims over the years) that homeschooled unvaccinated kids with autism are non-existent (vaccine causation).

None of which are true, but all dangle "recovery" under the noses of parents to peddle their wares, tell the parent what they want to hear, and take credit for any progress a child/patient makes while using the treatment.


If you believe autism is not curable or not treatable then why are you on this forum?
Do you have a child with autism, and have you not seen remarkable results with treatments? Diet and probiotics alone can make such a huge difference in my son. I personally witnessed a vaccine reaction to dtap that lasted roughly 7 days. Our pediatrician promised that are son was not autistic and that autistic kids are retards, and that my kid was not retarded. The first visit after that last vaccine our pediatrician recommended we see a developmental pediatrician. At that point my son lost his only word mama, eye contact, and became OCD over a spoon in his hand. He started having mild seizures or shutter attacks. Most doctors (including pediatricians) and nurses I have spoken to believe vaccines are linked to autism. They think vaccines are still important too. I doubt you'll get many doctors to state their opinion of any link on camera, and I think most of the doctors like Paul Offit claim vaccines are safe and effective are getting paid.

Winnie
Posts: 4226
Joined: Sat Mar 18, 2006 2:48 pm

Re: Reporter seeking stories from GcMAF patients

Postby Winnie » Wed Jul 15, 2015 2:07 pm

Mouse wrote:If you believe autism is not curable or not treatable then why are you on this forum?
Because I have a child with autism, and this is an autism forum. I have been on this forum for nearly a decade. FTR, I am not against legitimate promising treatments; I am, however, against irresponsible claims, quackery, and reckless experimentation.

Could you clarify what you mean by “not treatable?" Anyone with any knowledge about autism knows that children with autism can and often do make significant progress, and that many interventions are available toward that goal. There is hope for all children with autism, regardless of their place on the spectrum.

Mouse, what is your definition of “cure” or “recovery?” There is no known “cure” for autism, but there do appear to be children who lose the autism diagnosis. Legitimate research suggests that up to 20% of children may lose this diagnosis – here is a thread on the forum dedicated to these various research studies:

Research: Recovery, Optimal Outcome, & Diagnostic Stability
http://www.autismweb.com/forum/viewtopic.php?f=6&t=29107

I doubt any practitioner or salesperson who dangles a “recovery” rate in front of parents will share that research with you. Not good for business.


Mouse wrote:Do you have a child with autism,
Yes, I have a child with autism – actually a young adult now -- he is in college. Here is a forum post of mine from over 9 years ago describing his diagnostic baseline and our early path along this autism journey:
http://www.autismweb.com/forum/viewtopic.php?p=34612#p34612


Mouse wrote:and have you not seen remarkable results with treatments?
I have seen remarkable progress through the years (my son's and that of other children), though I don’t have a magic bullet to recommend. I’ve known parents who did much in the way of educational and biomed intervention, yet their children are still considered to be severely impacted by autism. I’ve known parents who did little in the way of intervention (of any kind), yet their children made remarkable progress.

The factors influencing an individual child’s developmental trajectory are very complex, and there is still much we don't know. Diagnostic baseline, co-morbid conditions, and intervention quality seem to be a few potential factors, though treatments like chelation, bleach enemas, and GcMAF are not. And the challenges shift with time as well -- the social, academic, and adaptive skills necessary to navigate a large public middle school, for instance, are a lot different and more demanding than those needed to blend in and be successful in kindergarten.

Which is why I’m often surprised when a parent of a preschooler claims to have “almost recovered” their child or predicts a “full recovery” within some time frame or based on some biomedical parameter. I’ve seen a lot of that over the years – and with it comes a perceived “status” in regard to the parent’s treatment recommendations for other children with autism. I’ve also seen these parental self-aggrandizing claims not materialize (even crash) over time for these “almost recovered” and “recovered” children.


Mouse wrote:Our pediatrician promised that are son was not autistic and that autistic kids are retards, and that my kid was not retarded.
Truly a shame that your pediatrician, especially in this era of increased autism awareness, is so ignorant and crass. But have you questioned the treatment and "recovery" claims of the "alternative" and conspiracy cults you now follow instead?

I guess borrowing an adage I have seen in various versions applies here:

Just because some cars are lemons doesn’t mean flying carpets work.
Winnie
"Make it a powerful memory, the happiest you can remember."

Mouse
Posts: 63
Joined: Mon Jun 08, 2015 10:46 pm

Re: Reporter seeking stories from GcMAF patients

Postby Mouse » Wed Jul 15, 2015 9:34 pm

Winnie wrote:But have you questioned the treatment and "recovery" claims of the "alternative" and conspiracy cults you now follow instead?

Just because some cars are lemons doesn’t mean flying carpets work.


I was suspicious vaccines caused autism long before I was thinking of having a kid. We followed a delayed vaccine schedule. I've only been promised recovery by schools (public and private) and doctors, but not by a DAN. Most of my hope for cures, and the science behind possible causes were pushed from studies and news results from searching google's news feed. I signed up here to question alternative treatments I've read elsewhere and ask parents questions. I'm shocked so many parents had positive results from chelation. I've almost finished a bottle of ALA on myself, but I'm not ready to give any to my son at this time. Chelation has such a negative stigma in the media, but when I ask parents on an autism forum roughly 50% had some benefit, while the other 50% had no effect, or even some regression.
I don't know of any conspiracy cult I am following unless you count age of autism, aspies for freedom, and autism speaks. As soon as Dr Bradstreet's death showed up on my google news feed I knew he was murdered, I didn't need a conspiracy site to tell me this, but while searching for more about his death there happens to be 2 other dead anti vax doctors dying in a 2 week span, and 2 missing somewhere midwest, and 2 murdered in Mexico with his lawyer.

Not all people who smoke die from lung cancer, but didn't the CDC spend some time protecting cigarettes too?

Winnie
Posts: 4226
Joined: Sat Mar 18, 2006 2:48 pm

Re: Reporter seeking stories from GcMAF patients

Postby Winnie » Wed Jul 15, 2015 11:03 pm

Mouse wrote:
Winnie wrote:But have you questioned the treatment and "recovery" claims of the "alternative" and conspiracy cults you now follow instead?

Just because some cars are lemons doesn’t mean flying carpets work.


I was suspicious vaccines caused autism long before I was thinking of having a kid. We followed a delayed vaccine schedule. I've only been promised recovery by schools (public and private) and doctors, but not by a DAN. Most of my hope for cures, and the science behind possible causes were pushed from studies and news results from searching google's news feed. I signed up here to question alternative treatments I've read elsewhere and ask parents questions. I'm shocked so many parents had positive results from chelation. I've almost finished a bottle of ALA on myself, but I'm not ready to give any to my son at this time. Chelation has such a negative stigma in the media, but when I ask parents on an autism forum roughly 50% had some benefit, while the other 50% had no effect, or even some regression.
I don't know of any conspiracy cult I am following unless you count age of autism, aspies for freedom, and autism speaks. As soon as Dr Bradstreet's death showed up on my google news feed I knew he was murdered, I didn't need a conspiracy site to tell me this, but while searching for more about his death there happens to be 2 other dead anti vax doctors dying in a 2 week span, and 2 missing somewhere midwest, and 2 murdered in Mexico with his lawyer.

Not all people who smoke die from lung cancer, but didn't the CDC spend some time protecting cigarettes too?


Sorry, not buying that public and private schools, as well as mainstream doctors, have promised "recovery." Not only is this implausible, but you are contradicting some of your earlier statements.

So then the answer is no, you do not question the treatment and "recovery" claims of the treatment and conspiracy cults you follow, correct?

None of your 12 anonymous internet poll participants stated that chelation "recovered" any child, and 6 of the 12 indicated no improvement or regression. This is what you are basing treatment decisions upon?

Yet you somehow "know" Dr. Bradstreet was murdered, and further, you know whodunnit. And you have managed to link other unrelated deaths to this big conspiracy too?

I guess the obvious logical conclusion here is that ALA causes clairvoyance.
Winnie
"Make it a powerful memory, the happiest you can remember."

Mouse
Posts: 63
Joined: Mon Jun 08, 2015 10:46 pm

Re: GcMAF

Postby Mouse » Thu Jul 16, 2015 10:48 am

Winnie, you are jumping to more conclusions than the kooky conspiracy sites you loath. In the short time I've been on this forum I've only read your posts to either be cynical or bullying and perhaps this is a community to which I'd rather not be a part of.
Instead of disagreeing politely you spend time offensively attacking others for their beliefs which do not align with yours.
I'd go into why you are wrong on every level of your last post but you you'll misread that too.

Sukee
Posts: 322
Joined: Tue Jan 06, 2009 2:33 pm

Re: GcMAF

Postby Sukee » Mon Jul 27, 2015 12:32 am

Mouse, don't waste your time on Winnie. I haven't been on this forum in a very long time. I came back to read if anything was posted on here about Bradstreet once I heard the news. It is such a tragedy along with the other "natural" practioners that have been found deceased lately.

It was almost comical to see Winnie is in the same place with her life discouraging others to seek out information to help their children.

Keep digging! This forum was a God send to me! When I started here all the parents were helping each other with one goal of helping our children progress. No one came here to be judged and ridiculed. You can decide for yourself who the quacks are! It's pretty crystal clear with negativity, passive aggressive attacks, and diarrhea of the mouth posts....over and over and over again! Lol

Good Luck Mouse!

Never give up. Any progress is progress!
Suzee~
DD-8- 50 lbs Rd: 34-25mg ALA

HALT1980
Posts: 249
Joined: Mon Sep 12, 2011 9:40 pm

Re: GcMAF

Postby HALT1980 » Mon Jul 27, 2015 1:13 am

Mouse wrote:Winnie, you are jumping to more conclusions than the kooky conspiracy sites you loath. In the short time I've been on this forum I've only read your posts to either be cynical or bullying and perhaps this is a community to which I'd rather not be a part of.
Instead of disagreeing politely you spend time offensively attacking others for their beliefs which do not align with yours.
I'd go into why you are wrong on every level of your last post but you you'll misread that too.


Please remember, you nor anyone else on this forum answers to Winnie. She is constantly trying to snag people in long arguments for no purpose excepts to further her own agenda. Don't let the haters drive you out. This forum was made for those like you and I and others interested in biomedical treatments for our kids. Just ignore her posts *thumbs up* Spend your time and energy doing for your child, not being snagged in some person's control games. There are parents here who support each other and actually care about one another. We aren't here to knock anyone down or rip anyone apart. Take care :)
the old "mommyjen"
~Mommy to 6 wonderful kids~


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