Autism Recovery for real!

Discuss autism diets and biomedical treatments of autism.

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Willsmom
Posts: 1166
Joined: Tue Jun 17, 2008 1:32 pm

Autism Recovery for real!

Postby Willsmom » Mon Apr 25, 2011 1:51 pm

In case you're not a member of the Cutler "cult" you might have missed a couple great posts this week on the Yahoo group, Autism-Mercury.
http://health.groups.yahoo.com/group/Autism-Mercury/

One is a complete recovery, titled "Don't give Up" and the other is inching closer every day, called, "A good problem to have- what to do after 100 rounds?"

Another mother who has completely recovered her daughter comments, as does Andy himself.

Enjoy. :)

AnxiousDad
Posts: 554
Joined: Thu Feb 24, 2011 1:05 pm

Re: Autism Recovery for real!

Postby AnxiousDad » Mon Apr 25, 2011 2:06 pm

Willsmom,
We are doing AC protocol and have been doing homotoxicology along with 25 hrs ABA+ speech + Occupational. These are the interventions that are also mentioned by the parent on Yahoo group who completely recovered her son.
While we have done only 9 rounds of AC protocol we have been doing the remaining therapies for the last 1 year. We are yet to see any improvements.

Willsmom
Posts: 1166
Joined: Tue Jun 17, 2008 1:32 pm

Re: Autism Recovery for real!

Postby Willsmom » Mon Apr 25, 2011 2:15 pm

Yeah, I know what you mean...I wasted 1000's on ABA, Speech & OT!

But after 81 rounds of chelation, we have a boy! :D

Gotta treat the yeast, AD.

fontanalucy
Posts: 212
Joined: Tue Sep 28, 2010 1:46 pm

Re: Autism Recovery for real!

Postby fontanalucy » Mon Apr 25, 2011 2:24 pm

Willsmom wrote:In case you're not a member of the Cutler "cult" you might have missed a couple great posts this week on the Yahoo group, Autism-Mercury.
http://health.groups.yahoo.com/group/Autism-Mercury/

One is a complete recovery, titled "Don't give Up" and the other is inching closer every day, called, "A good problem to have- what to do after 100 rounds?"

I really enjoyed reading this post ^^^ We are at 9 rounds and somedays I feel like it's going to take forever to see major gains like the OP describes. This gives me inspiration to keep going :) At least I know we are not pulling any mercury yet so this might explain why my little girl is not showing improvement in her speech yet.Another mother who has completely recovered her daughter comments, as does Andy himself.

Enjoy. :)
Lucia
Keira/7
AC Chelation DMSA 25 mg
Round #52

Sassifrassilassi
Posts: 91
Joined: Mon Aug 11, 2008 2:53 pm

Re: Autism Recovery for real!

Postby Sassifrassilassi » Mon Apr 25, 2011 4:09 pm

Willsmom, are you Jan from Mercury Babies?
http://thecultofrecovery.wordpress.com/

Willsmom
Posts: 1166
Joined: Tue Jun 17, 2008 1:32 pm

Re: Autism Recovery for real!

Postby Willsmom » Tue Apr 26, 2011 1:08 am

Sassifrassilassi wrote:Willsmom, are you Jan from Mercury Babies?


Nope. But she has posted her a couple times. I think as 'mercurybabies'.

Found her:
memberlist.php?mode=viewprofile&u=15333

Kenny V
Posts: 1282
Joined: Tue Apr 11, 2006 10:22 am

Re: Autism Recovery for real!

Postby Kenny V » Tue Apr 26, 2011 8:12 am

Willsmom wrote:
Sassifrassilassi wrote:Willsmom, are you Jan from Mercury Babies?


Nope. But she has posted her a couple times. I think as 'mercurybabies'.

Found her:
memberlist.php?mode=viewprofile&u=15333


JMHO Don’t bother this mom… most likely she will ignore most anybody from this forum. After a former exchange all I got say she is not foolish to what has happened here
Always Hope For Recovery

Sassifrassilassi
Posts: 91
Joined: Mon Aug 11, 2008 2:53 pm

Re: Autism Recovery for real!

Postby Sassifrassilassi » Tue Apr 26, 2011 8:17 am

Kenny V wrote:
Willsmom wrote:
Sassifrassilassi wrote:Willsmom, are you Jan from Mercury Babies?


Nope. But she has posted her a couple times. I think as 'mercurybabies'.

Found her:
memberlist.php?mode=viewprofile&u=15333


JMHO Don’t bother this mom… most likely she will ignore most anybody from this forum. After a former exchange all I got say she is not foolish to what has happened here


Don't bother Willsmom? I just asked because I was friends with Jan and even started a Yahoo group and added her as an admin. Willsmom's posts are very similar to the way Jan writes to people.
http://thecultofrecovery.wordpress.com/

dabaxter
Posts: 4049
Joined: Wed Nov 14, 2007 12:50 pm

Re: Autism Recovery for real!

Postby dabaxter » Tue Apr 26, 2011 8:46 am

WM,
Is this the topic you were referring to(about the 7 YO that is mostly recovered after 120 rounds?)?

http://health.groups.yahoo.com/group/Au ... age/294237

I wonder which chelator(s) she used.
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX

Willsmom
Posts: 1166
Joined: Tue Jun 17, 2008 1:32 pm

Re: Autism Recovery for real!

Postby Willsmom » Tue Apr 26, 2011 9:09 am

dabaxter wrote:WM,
Is this the topic you were referring to(about the 7 YO that is mostly recovered after 120 rounds?)?

http://health.groups.yahoo.com/group/Au ... age/294237

I wonder which chelator(s) she used.


Yes! :D Isn't that wonderful?!

I'm sure they used a lot of ALA (my DH calls it 'rocketfuel' :) )

We really started moving into major Recoveryville when we began using that!

dabaxter
Posts: 4049
Joined: Wed Nov 14, 2007 12:50 pm

Re: Autism Recovery for real!

Postby dabaxter » Tue Apr 26, 2011 9:17 am

We regressed with ALA. I'm sure it was due to a clostridia flare.

I did a search over there and saw where Rebecca said here daughter was completely recovered in the 4th grade after 188 rounds. I posted to quiz her about what all they did.
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX

Sassifrassilassi
Posts: 91
Joined: Mon Aug 11, 2008 2:53 pm

Re: Autism Recovery for real!

Postby Sassifrassilassi » Tue Apr 26, 2011 10:06 am

dabaxter wrote:We regressed with ALA. I'm sure it was due to a clostridia flare.

I did a search over there and saw where Rebecca said here daughter was completely recovered in the 4th grade after 188 rounds. I posted to quiz her about what all they did.


Rebecca's daughter/granddaughter (never sure if she's the mother or grandmother) didn't have autism. She had ADHD. She's posted about it. Jan's son doesn't have autism either, she is now saying he has Aspergers, but she used to say he was on the verge of autism.
http://thecultofrecovery.wordpress.com/

expo
Posts: 168
Joined: Fri Nov 12, 2010 11:20 am

Re: Autism Recovery for real!

Postby expo » Tue Apr 26, 2011 10:56 am

It is Rebecca's daughter and as I recall from her story in the yahoo group, her daughter was diagnosed with PDD-NOS and not ADHD.

Sassifrassilassi
Posts: 91
Joined: Mon Aug 11, 2008 2:53 pm

Re: Autism Recovery for real!

Postby Sassifrassilassi » Tue Apr 26, 2011 11:12 am

expo wrote:It is Rebecca's daughter and as I recall from her story in the yahoo group, her daughter was diagnosed with PDD-NOS and not ADHD.


Well, she has posted that it's ADHD. Rebecca is a mystery. I'm not convinced she is real to be honest! Not saying kids aren't recovering with AC chelation, just that Rebecca is an odd one. I used to be in contact with her quite a bit, some things just didn't make sense. She used to post as her mother, then suddenly she was the daughter. The years of her schooling and stuff don't work out. Just saying.
http://thecultofrecovery.wordpress.com/

DrMom
Posts: 846
Joined: Sat Feb 19, 2011 9:39 pm

Re: Autism Recovery for real!

Postby DrMom » Tue Apr 26, 2011 3:57 pm

I'm the mother. My mother was on A-M in the beginning of our quest to help our girl. She was never dx'd. I am a clinical child psychologist and my girl met the criteria for Pdd-Nos. She missed the criteria for Asperger's by one point.

We did 188 rounds of low/frequent dose chelation. We did viral treatment. We did no therapy, none.

She is a typical soon to be 10 year old in a typical public school in a class of 26 other kids. We started chelation shortly before she turned 4 years. She was 90-95% recovered by age 6 when she started Kindergarten. No one at her school ever knew she was an ASD child.

I wish the best for all your children.

Rebecca

AnxiousDad
Posts: 554
Joined: Thu Feb 24, 2011 1:05 pm

Re: Autism Recovery for real!

Postby AnxiousDad » Tue Apr 26, 2011 6:24 pm

Met the criterion of PDD-NOS not ASD. Also self diagnosed by Dr. Mom who is a child psycologist. Hmm..
I dont know what everyone else feels about this. Most recovery stories that i have seen are with children, who never got a formal diagnosis from a developmental pediatrician or children with PDD-NOS. There is another parent in the blog of Houston Homeopathy, who swears by the HCH recovery, but also states that the early intervention wouldnt agree with her on the autism diagnosis.
How many of us here truly have an ASD diagnosis and not PDD-NOS diagnosis from a developmental pediatrician? And how many of these developmental neurologist ASD diagnosed children have recovered?

Sassifrassilassi
Posts: 91
Joined: Mon Aug 11, 2008 2:53 pm

Re: Autism Recovery for real!

Postby Sassifrassilassi » Tue Apr 26, 2011 6:30 pm

AnxiousDad wrote:Met the criterion of PDD-NOS not ASD. Also self diagnosed by Dr. Mom who is a child psycologist. Hmm..
I dont know what everyone else feels about this. Most recovery stories that i have seen are with children, who never got a formal diagnosis from a developmental pediatrician or children with PDD-NOS. There is another parent in the blog of Houston Homeopathy, who swears by the HCH recovery, but also states that the early intervention wouldnt agree with her on the autism diagnosis.
How many of us here truly have an ASD diagnosis and not PDD-NOS diagnosis from a developmental pediatrician? And how many of these developmental neurologist ASD diagnosed children have recovered?


I agree.

We have an official diagnosis of Autism, we were told she was moderate to severe. She is moderate now. Kids with PDD or Mild autism will recover faster. Some might not have had full on autism or PDD. I haven't really heard of many severe cases recovering. Maybe Stan Kurtz's son. He did Valtrex only. Jenny McCarthy's son isn't really recovered, just maintained.
http://thecultofrecovery.wordpress.com/

DrMom
Posts: 846
Joined: Sat Feb 19, 2011 9:39 pm

Re: Autism Recovery for real!

Postby DrMom » Tue Apr 26, 2011 6:44 pm

AnxiousDad wrote:Met the criterion of PDD-NOS not ASD.

*****Pdd-Nos is an ASD, Autism Spectrum Disorder.

Also self diagnosed by Dr. Mom who is a child psycologist. Hmm..

*****A Phd psychologist is qualified to DX any Childhood Disorder, you don't need a neurologist.


I dont know what everyone else feels about this.

****You can feel as you want about it, yours or anyone else's feelings have nothing to do with it, not sure why this is being brought up.

It's true that Pdd-Nos kids have the best treatment outcomes, but almost all kids regardless of DX benefit from chelation, about 75% is the exact figure.

Why is it when your child recovers that other ASD parents tell you they weren't sick enough?

Rebecca

Most recovery stories that i have seen are with children, who never got a formal diagnosis from a developmental pediatrician or children with PDD-NOS. There is another parent in the blog of Houston Homeopathy, who swears by the HCH recovery, but also states that the early intervention wouldnt agree with her on the autism diagnosis.
How many of us here truly have an ASD diagnosis and not PDD-NOS diagnosis from a developmental pediatrician? And how many of these developmental neurologist ASD diagnosed children have recovered?

autismgal
Posts: 587
Joined: Wed Nov 14, 2007 6:13 pm

Re: Autism Recovery for real!

Postby autismgal » Tue Apr 26, 2011 6:46 pm

AnxiousDad wrote:Met the criterion of PDD-NOS not ASD. Also self diagnosed by Dr. Mom who is a child psycologist. Hmm..
I dont know what everyone else feels about this. Most recovery stories that i have seen are with children, who never got a formal diagnosis from a developmental pediatrician or children with PDD-NOS. There is another parent in the blog of Houston Homeopathy, who swears by the HCH recovery, but also states that the early intervention wouldnt agree with her on the autism diagnosis.
How many of us here truly have an ASD diagnosis and not PDD-NOS diagnosis from a developmental pediatrician? And how many of these developmental neurologist ASD diagnosed children have recovered?


My daughter was in Early Intervention Preschool with a couple of kids who were being followed by their doctors because of some sensory, attention and speech delay issues. They never were diagnosed with ASD, did well with Early Intervention, and they recovered from something, but no one knows what. One parent, who was worried about ASD, now claims an ASD recovery but that's more about her fear of ASD; her son was never diagnosed with ASD, just speech delay.

My daughter was formally diagnosed with autism (even mental retardation) by different medical specialists. (She is now a teen with a normal IQ and in regular classes).

AnxiousDad
Posts: 554
Joined: Thu Feb 24, 2011 1:05 pm

Re: Autism Recovery for real!

Postby AnxiousDad » Tue Apr 26, 2011 7:07 pm

LOL :D, I am surprised that a "PhD in Child Psycology", who think that they can make a diagnosis, doesnt know that in DSM-V, PDD-NOS and Aspergers have been removed from Autism Diagnosis.
What i meant is this, sure in DSM-IV, they put everything in the same umbrella. In DSM-V which was implemented in January of 2010, PDD-NOS and Asperger no longer are a part of Autism diagnosis. Our developemental neurologist was very clear about this difference(Between DSM-IV and DSM-V) when she gave us the diagnosis of autism. It did break our heart that our son was not even PDD-NOS.This is because they must have realized that most PDD-NOS/Aspergers kid will recover with time, because that is what it is, a developmental delay. Interventions make the recovery process faster.


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