AutismWeb Forum

Outrageous.

A year ago, following the death of Tariq Nadama via his treatment by Dr. Roy Kerry, Bernie Rimland took the following stance:

http://www.post-gazette.com/pg/05241/561879.stm



Apparently since that time, Dr. Roy Kerry has attended a DAN! convention and an 8-hour (INTENSIVE!) DAN! session to add to his treatment expertise:

http://www.autismwebsite.com/ari-lists/ ... _M.D..html



(Whew! Glad we cleared up that little chelator misunderstanding!)

And so now he is listed on the ARI DAN! physician referral list:

http://www.autismwebsite.com/ari-lists/danus.html

Thanks, ARI, for promoting excellence in the treatment of autism. Not.

P.S. ARI might consider an additional line on the physician form that reads something like "Anyone die lately?"

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Winnie
"Make it a powerful memory, the happiest you can remember."

I remember when the ARI mentioned that Dr. Kerry was not a member.
The irony burns.

Are you all aware that doctors mistreat patients every single day in clincial practice - and that many hundreds of thousands of people die from it? Does that mean every doc who malpractices just up and quits?

Yes, I agree, this is a bit scary, and due to the publicity, you are more aware of it - but perhaps this doctor saw the ultimate error he made, has made the effort to learn from it, and has even joined this consortium so as to reduce his mistakes in the future and learn from other docs.

I don't see anything positive in posting Darth Vader pics or making light of it. The guy made an error - or a staff member or nurse could have made the error as well. It happens a lot, and not just in this area of autism.

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Joey, 10 yrs., PDD-NOS was our last dx
GFCF, Yasko, ABA
Hoping to get to RDI

Joey'smom,

This was not a simple case of making an error. You might want to take a look at this thread:

http://www.autismweb.com/forum/viewtopi ... c&start=60

scroll down to where Do'C makes his first post on that page.

The "guy" made an error that killed a little boy. A little boy who had no say in what was happening to him.
Absolutely the doctor should be made held accountable. But, his parent's should hold some of the blame too.

It was quite a bit worse than just an "error."

He killed a little boy with a lethal quack treatment. ARI was all about backing away when it happened -- but since then he has been placed on the ARI referral list for children with autism?

And an eight-hour DAN! course deams him fit to practice medicine again with these children? Sorry Tariq, it was just a little misunderstanding. It's all cleared up now.

I can't believe the man has the nerve to appear anywhere near a child with autism. I guess he is not giving up on a lucrative market niche (though I can't imagine that any sane parent would be anxious to make an appointment).

If the ARI and DAN! expect to be taken seriously, then they should behave accordingly.

http://www.post-gazette.com/pg/06304/734312-54.stm

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Winnie
"Make it a powerful memory, the happiest you can remember."

I completely agree with Casper. I certainly would never take a child to him nor do I think he should have become a certified DAN doctor in his quickie course. However, his parents did nothing but love their son and do everything in their power to give him a better life. As parents, most of us tend to blame ourselves when something goes wrong. Their pain and suffering will last a lifetime....I hope they don't add unjustified guilt to the life they must now live without their beloved son. Sad, sad story.

Grandma C

Jonathan do you have children??? I wonder if one of your children died wgile receivng a treatment if you would find it funny to post a picture of Darth Vader.

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Kathleen
Proud Mom

Kathleen,

I understood Jonathan's pic to be referring to the ARI's flip-flopping to the other side (first denying that Kerry was a DAN!, then after the boy's death, embracing Kerry on the physician referral list), not a reference to the death.

The tragedy of the situation is not a pic of Darth Vader. Considering the number of issues on this thread to react to, that is an odd pick.

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Winnie
"Make it a powerful memory, the happiest you can remember."

Grandma C,

That "quickie" course is how a DAN! doc becomes a DAN! doc. There is no additional certification or standards required to be included on the Autism Research Institute's DAN! physician referral list.

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Winnie
"Make it a powerful memory, the happiest you can remember."

The parents are just making decisions based on what they were told.



How often do you hear physicians or other parents, who are promoting chelation or any other experimental treatments, warning other parents of possible risks in a balanced fashion?

What I do see more often are adverse reactions of a treatment being dismissed as "corrective" in some way, or indicating a need to add something else, or suggesting that the parent has not persisted with the treatment sufficiently.

If there is no one out there to say "HEY! Check out the information on the other side!"... how would the parent have the info to make a risk/benefit decision?

Perhaps these parents would have made different treatment decisions given access to more (or at least different) information.

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Winnie
"Make it a powerful memory, the happiest you can remember."

Very disturbing. At the very least this was a very careless, foolish oversight on the part of ARI. At most it is gross negligence.


I have to agree.

ETA: I also found the use of DV to be tasteless under the circumstances. The "gotcha" factor might have been appropriate or funny in some other instance, but not this one.

Winnie

I respect everyone's right to an opinion but there is nothing funny about this issue. You may be comfortable with jokes involving a character that murdered other characters as long as it is--as you think--ONLY linked to ARI and not the child's death. I am not.

I find it interesting you think such a reaction "odd".

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Kathleen
Proud Mom

Joey's mom and kathleenjj:

Dr. Rimland and other people associated with ARI where very quick to point out that Dr. Kerry was involved in DAN! when all this occured. That seems perfectly reasonable, as it was factual.

Now following this event Dr. Kerry has suddenly become associated with DAN! via his completion of a training seminar.

The picture of Darth Vader is not important in itself. I am not comparing Dr. Kerry or ARI to Vader. I am having the Vader point out the use of irony by the ARI/DAN!

Vader once said "the force is strong with this one".

The picture reads "the irony is strong with this one"

And truly it is. The DAN! folks have displayed an irony so thick, I think I could cut it with an knife.

Kathleen, you are are right there is nothing "funny" about this issue. I do not find it funny, I find it to be the epitome of irresponcible, I have no repsect for such decision making as displayed by DAN! here.

i thought we were to refrain from the language and refrence to treatments that posters know some are using biomed as "quack" etc. while posting and debating our positions??????

regardless of the treatment be it chelation or testosterone or something else????

i am offended when someone posts this description "quack" or other inflamatory descriptions in knowledge and pure disregard for the rules, thats what ran off poor sinrath and created all that tension in the first place.

so for winnie to be coming back so blatantly disrespectful again trying to place treatment in her version of what it is gets me upset, not to the point of name calling and revengeful back talk like our ousted sinrath, but i wont sit back and not call her out on it.

so please moderator though there are not real attacks happenning, there are the hidden agendas and resurgence of treament name calling being judged and surfacing again with the lack of respect to the posters/readers, just personal feelings in the negative realm of that treatment here.

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Lisalynn
keeping hope and faith through it all.

Kathleen,

Darth Vader is fictional, and the cast of Star Wars really didn't die.

Dr. Kerry is real, and Tariq really did die, due to Dr. Kerry's lethal experiment. I'm not comfortable with that.

I think your persistence in this Star Wars comparison is actually trivializing this tragedy. Do you have any comments on the topic of this thread?

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Winnie
"Make it a powerful memory, the happiest you can remember."

[sigh] I think this thread is in danger of being highjacked away from the issue. I don't want my picture to become the issue. I removed it, my accusation of irony in the judegment by the DAN!/ARI leadership remains.

LisaLynn,

No parents on this forum are using this treatment. I doubt that any parents are considering using the treatment Dr. Kerry used, because it is potentially lethal. A child died. Somehow this seems more important than offending someone's semantic sensibilities or defending a broader realm of biomed. A child was killed with this particular chelating treatment -- and I never equated this treatment to any other biomed treatment.

Still, I think it is shameful that ARI would refer parents to this physician.

If his parents had known this treatment was potentially lethal, he might be alive today.

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Winnie
"Make it a powerful memory, the happiest you can remember."

What hidden agenda? Do you mean the advocation of a differing point of view? Or do you mean that some people here are really shills of one sort or another (maybe working for medical companies)? Can you specify?